Monday, September 24, 2018

My Teeth be Shining! - Smile Brilliant Collaboration

Use code thesparkledlife to receive 15% off!!

Since being diagnosed with Multiple Sclerosis 6 years ago, I have found a new appreciation for my teeth.



Why?

Because they are the ONLY part of my body that is still working, functioning, and looking babe. (:

So I take good care of my teeth.  Whitening my teeth has always been something I've done before a big event or just to give myself a little self-care love.  I've used teeth whitening gels from CVS and more often, crests whitening strips - both of which I loved. 

However, they couldnt get all my teeth.  My teeth are very "smushed" and I want every nook and cranny of my teeth to me the same-ish color.  I dont ask for much. (:

So when Smile Brilliant reached out to me for a collaboration, I was 100% on board.

Thursday, August 9, 2018

Ice Ice Baby - Koldtec Cold Towel

(for the month of August, Koldtec (https://www.koldtec.com/) has given me a promo code for friends and family - SPARKLE16 - for $10 off, an extra strip of ice (worth $6), and free shipping Canada and USA)



So with Multiple Sclerosis, heat is no bueno.  Absolutely not good.  It's called Uhthoff's Phenomenon (please dont ask for how to pronounce that word) and it's something that we learn how to manage quickly.

Uhthoff's Phenomenon is when someone with MS overheats; the overheating then causes a worsening of symptoms.  It literally just feels like your body is shutting down; my vision goes, my legs go, my arms go, my speech goes.  It takes a few hours to a few days to rest and recover.  It's a bitch.

There are a few ways to prevent this: stay inside (: or stay cool.  I like more the stay cool techniques as I love summer and being outside.  So for six years I have lived off of ice packs, usually being as classy as can be and stuffing them down my pants and up my shirts.

Then, I met the company Koldtec (https://www.koldtec.com/).  We connected over instagram - they noticed my love for ice and I noticed they had ice.  Oh baby.



Thursday, July 12, 2018

Medical ID bracelet - but like it's cute

When I was first diagnosed, part of my discharge packet was being told to get a medical ID bracelet.  I googled.  I hated.  I ignored.  Sorry, but life is too short to wear ugly bracelets.

Then I met American Medical ID.  And basically fell in love because ALL of their products are actually "cute" and didnt stand out as a "hey Im sick here's who to call" bracelet.



Tuesday, July 10, 2018

CBD Oil Be Lit

CBD oil is kind of the craze right now.  For a white I was skeptical, mostly because I saw SO many network marketing companies selling these products on instagram.  And of course I researched like heck and read so many places that these items were often diluted or didnt have cbd oil in them at all.

I stayed away.

And then a while ago I was introduced to Joel and Theramu.  He sent me some cbd products at kind of the best time to try them - I was have a MS hug flare that just was sticking around for weeks.  I was desperate so figured what the hell.

Damn it - they provided relief.


Wednesday, May 9, 2018

Pittsburgh Marathon 2018

So a few months ago I heard about the opportunity to partake in the Pittsburgh Marathon hand-cycling division in a recumbent bicycle.  I had to get a lot of notes from doctors and petition the board but they granted me access!!!




But why cycle the Pittsburgh Marathon?  Because MS says I cant run.  "Tell me I cant and I'll show you I can".  I cant RUN a marathon but I sure as well can CYCLE a marathon.

Picture by Empty Nest Photography Studio

So thats what I did. (:

Two weeks before the marathon, the local news station did an interview with me and named me "Athlete of the Week" which was pretty awesome.


To watch, visit here: http://www.wtae.com/article/action-athlete-cycling-the-pittsburgh-marathon/20090659

Leading up to the marathon I ended up with a kidney infection and overheating.  I was so nervous that all my hard work in prepping for this event would be for not.

But I finished that marathon.  And, even more fun, came in first in the female wheeler division. (:



Despite limitations, living limitlessly over here!!




LOVE!!

Tuesday, March 20, 2018

Multiple Sclerosis Influencers

Healthline recently posted an amazing article recently highlighting 7 MS influencers with their mantras that keep them going.

And I had the pleasure of being one of the 7!


Be sure to share what your MS mantra is! 


Saturday, March 17, 2018

How I Stay Positive

I get asked often how I remain so positive.

To which I used to answer, with all sincerity: I just do!



It wasn’t till lately when someone challenged me with the question: 


what are the actual steps you take to remain positive? 


that I saw there were actual, distinctive things I do to remain positive.

First and foremost: I honestly believe the best medicine you can give your body is a good mood. And science thinks so too. Thinking positive thoughts in your head releases certain hormones that relax your bod and equip it for stress.

A firsthand example of this was when I had my bicycle accident. As soon as I landed I knew I’d broken my elbow and could see my humerous bent oddly and pointing out. I panicked. Someone called the ambulance. Someone else took care of my bicycle. There was a Mom with her kid. For some reason seeing that kid brought things in focus for me.  I cant say bad words in front of this kid (this was after I let a lot of f words slip).  I cant let this kid, staring at me terrified, see me cry.  I reminded myself I needed to stay calm, to focus on something good. I started repeating to myself, "I’m going to be ok. I’m going to be ok".  Outloud. And I believed it. So much so that by the time the ambulance got there, my blood pressure was in normal ranges. The EMT was quite impressed.




So, positive thoughts = good.


But how do you run to them easily when the going gets tough?

Training. Just like with anything, it takes time, persistence, and dedication.

Step 1. You’ve decided to adapt a positive lifestyle and mind and remain positive when the going gets tough. You have to want it.  You have to be willing to work for it.

Step 2. Remind yourself of this. Write phrases that remind you on postits and put it where you'll see it many times a day. Change the background of your phone to a positive phrased wallpaper. In those moments you become overwhelmed, you’ll see these reminders and then you’ll go back to step 1: decide to remain positive.

Step 3. Have a go to positive uplifter. For me, it’s puppies. Whenever I’ve had a rough moment where I just don’t want to be positive, I go to the puppies. Either in real life or on instagram / Pinterest. This is an immediate mood lifter. I then see one of my reminders, and then I’m back at step 1.



Step 4: gratitude list. Make a list of all the things you’re thankful for. Keep it within arm’s access. Go to it to add to and remind yourself often. Yes, mine has the basics: faith, family, friends, puppies. But it also has Starbucks. And pizza. And cycling. And the color rose gold. And Paris. And pool days. And so on and so on. It’s a beautiful list of all the things I’m surrounded with that are positive.

Step 5. Reward yourself. Every year on my anniversary with MS, I get myself a present. Something small (an engraved ring) to something big (my hope tattoo), it’s a reward. A reward for making it through the past year with a positive mind. It’s not always easy to do; some days, it’s REALLY hard. But rewarding yourself reminds your brain and your soul, you’re doing great, keep it up.



Step 6. Condition. It helps to have a friend in this stage, or a coach. For me, it was someone I was close to when I was newly diagnosed. Whenever I’d start weeping or complaining, he’d point out a positive lining. It was REALLY annoying. It caused many fights. Why couldn’t he just let me be sad? Then slowly I started to listen. I started to recognize the good. I then went from recognizing to LOOKING for it. And, in every situation, to this day, I’ve been able to find it, to find something good, positive. Even if it’s just me being able to breath: that's positive; I’m alive. 

You have to work the brain muscle and condition it to this type of programming. With time, it will eventually become so instinctive, you won’t even have to think. You just go there. You just are positive.


All this sounds good and attainable.  But what about on those really bad days?  The days where the light is dim and the positive light is dimmer.  What then?


  • No “triggers”. First you have to determine what the triggers are. For me, it’s Facebook (all my friends are living life without me!), dramatic shows/books/movies, depressing music. These melt me in to a state. This also relates to what I surround myself with socially: on media and in real life.  Some people may be a trigger for you in some way (I really dislike the word trigger but here it is applicable).  And for whatever reason it is, maybe just take a break for a bit.  It can also be that someone is continually negative- when you're trying your best to be the opposite, their energy can be depleting.  As has become a very strong saying between my bestie and I, "bless and release".  
  • Quiet. On bad days, I’m very quiet. This usually is because on bad days my speech isn’t working.  (: But also it’s to save energy. I put that saved energy in to healing my body from the hard day.
  • Have a cry. Or reschedule. If necessary, I’ll have a little cry. Just a little one. And then I’m done. If I feel like I need to cry more, I’ll “schedule” it for another time (no joke). I’ll save it for, say, 9pm that night. By pushing it out, I give myself time to find something positive that will outshine that sad moment. If I need to cry though, it’s scheduled, just in case.
  • Make a list. You don’t have to be productive to trick your brain in to thinking it is. If my mind is overwhelmed with thoughts, I’ll make a list of them. Done. They’re on paper/in my iPhone notes. No longer in my brain. Sounds silly but this works; my phone has so many lists on it it's probably quite obsurd.  The cool thing about this, when looking back retrospectively at "bad day lists" of what I'm anxious/worried about, these things I thought were so challenging, I've overcome.  
  • Change the clothes. Even if it’s just switching from pjs to a different pair of pjs, I change. This is important in keeping respect for your body. Showering is just too damn hard some days but changing clothes is attainable. It gives me a little reminder I’m not giving up on my body, I believe in myself enough to change in to clean pjs.
  • Talk to your go to. And don’t talk about your disease outside of “I’m having a bad day” and maybe a bit on what that means for you in that moment. Get lost in the conversation. Even if it’s just for 5 minutes, you contributed to society. You let your mind focus on someone else. You got distracted.

These steps help me to calm my body down. 

And then, I return to the basics:

Deep breath. Quick prayer. Can I be positive and look at puppies? Nope, still a bad day. Ok.

2 hours later: deep breath. Quick prayer. Positive time? Maybe. Ok.

3 hours later: deep breath. Quick prayer. Brain goes back to conditioned mind. I see a post it. Is that a puppy video? Omg puppies are so cute. Ok. Not every day is good but there’s good in every day. Tomorrow will be better. Good night.



Then there are the quick moments: your doctor just gave you bad news. You have to drive home but can’t stop crying. You just want to crawl in a hole. What do I do?

Breath.
Do a body scan.
Head. Shoulders. Back. Hips. Legs. Arms. Am I contracting those muscles? Release. Contract. Release.
Breath.

Look at you- you just took your mind off the bad for a few minutes. You’re going to be ok. Repeat that over with a deep breath in between each movement. You’ve got this.



All this might sound ridiculous. And even while writing it out, I thought “really Eliz?! This is what you want to share? How you schedule your cries?!”

Damn right it is.
Because this is my recipe.

I’ve had some terrible things thrown at me. And yet I still wake up every day happy. Because why not? I’m alive. I’m beautiful. I’m breathing. I have puppies. I have God. I have my family and friends. I have Paris. And I have Starbucks.

Life is good.




Something I want to note is depression and MS have a very strong connection. If you’re feeling like you can’t think of a positive thought no matter how hard you try, seek counseling. Talk to your doctor. It does not mean you’re weak. Ms causes brain damage through demylization and sometimes that can cause depression. Reach out.