Sunday, June 23, 2013

Home / Rehab 2013

So Rehab 2013 was short lived (that is, if you can call 10 days in the hospital short lived).

The view from the hospital.  This was one of my reading spots.

Im very glad to be home and recovery is on the rise (hospital recovery that is; "they" say for every day in the hospital it takes 2 to recover.  My recovery period is usually half or less than that so here's hoping).

The original time frame for my stay was 2-3 weeks, possibly more.  However, as the days went by, things werent matching up.

My spasticity was actually not that; rather, diagnosis was uncontrolled tremors due to some neurological malfunction.  What this meant was that physical therapy, occupational therapy, speech therapy, etc, could do all they could but until the doctors found a medicine to stop my tremors, their / my hard work would go unnoticed.  

 My half of the hospital room.  Tiny, tiny, tiny.

So in the end what started out as a hopeful journey of therapy to learn how to re-do life, as done last summer, was shattered as it became more and more relevant that I was there for medicine monitoring.  

It was my decision to then ask the team of doctors and therapists "How about we do this outpatient and I go home?" and all agreed.  There was nothing besides repetition that could be done and an autoimmune patient isnt best to be found in the hospital.  

So, here we are, another wall.

Im not ready to share the details of the thoughts of the diagnosis because, well, 1, it's not confirmed, and comes with many questions, and 2, sounds ridiculous and I am hoping for a different answer.  Hopefully I will have a better idea in a week.

In the meantime, I am home and thankful.  I have some sparkle searching I need to do as I seem to have lost some in the past few months.  Hope finding as well. 

Im tired.

 The best feeling.

We'll get there eventually.

Much love,  

PS: If you're in the mood for some beautiful music, check out this wonderful rendition of Just Breathe by Willie Nelson and son Lucas (and yes, he sounds just like his dad).  This was my favorite part of Farm Aid last year, so beautiful.